Friday, February 1, 2013

On Losing Contact and Losing a Friend

On Sunday morning, I got word that my dear, lifelong friend Denise passed away. Denise and I grew up together. She and her family moved in across the street from us when she was three and I was four years old. We spent years playing baby dolls and dress up. We dug in my sandbox or played on her swingset. We whispered a million secrets to one another during a thousand sleepovers. We even pierced our fingers and swapped our blood so we could be "real sisters."

Denise was a part of every one of my major life events. She was in my life when my parents divorced. She was around for every move, every school transfer, every life struggle and celebration. We've been side-by-side through movies, plays, and concerts. We vacationed together both as children and adults. She saw me through schools and international adventures. She knew about every boyfriend -- every happiness, every heartbreak -- and over Braum's biscuits and gravy, she convinced me to have a wedding instead of eloping when "the one" finally came along.

Denise was my most constant companion through 15 weeks of pregnancy bedrest when I was expecting Gracie, my first biological child. She supplied me in banana splits and painted the toenails I could no longer reach. Then, she stood at my delivery room bedside and coached me as well as James. Since our move to Texas eight years ago, she and I have traveled back-and-forth to stay with one another, and we've had loads of phone time. Denise was the single person in my life to share Christ with me, and though I vehemently disagreed with her religion at the time, it was her love and constant grace in the midst of my craziness that planted the seeds for my eventual salvation.

About four years ago, Denise had gastric bypass surgery. The doctor in her case did a really awful job, and she began growing sicker and sicker with no hope for reversal. Her husband (who had also had the surgery) had similar complications, and he had to leave his job to go on disability after developing a seizure disorder. Their lives changed drastically, and they lost so much in a very short time. In 2009, their losses led to a kind of despair that caused them to begin drinking heavily (something Denise had never done before), and she no longer wanted the same kind of contact with me. I don't know if it was depression or shame, but regardless of whatever drove her desire for isolation, the fact that I was homeschooling two children and had a newborn made it easy to honor her request for space.

I always thought we'd have time to catch up...

In 2010, because of her altered absorption, the drinking led to Denise developing a severe case of cirrhosis of the liver. I didn't know about it until her sister emailed me to tell me that Denise was on hospice and not expected to live long. Evidently, she'd gotten sober and had been on a transplant list for a few months, but when she relapsed, she was removed from the list and put back on hospice. In 2011, she was moved between family members across different states, and her moves coupled with the fact that we added two more infants to our family while I became the primary caretaker of my cancer-ridden, terminally-ill mother led to a total loss of contact. I kept thinking of reaching out, but I didn't. I made excuses, but the reality is I was afraid to face both her addiction and her mortality (along with dealing with everything else on my plate), so I made the choice not to press forward. Because of my selfishness and fear, I missed out on a sweet window of opportunity as I now know the whole time I was here in Texas making excuses, she was with her husband and daughter in Oklahoma, sober and in decent health. She relapsed in September 2012 and declined rapidly, dying January 26th, 2013.

The emotions I have about her death are complicated. I've loved Denise my whole life long, but when she needed me the most, I wasn't there. I know she asked for the space, but I should have pushed through. The eventual absolute loss of contact was totally my fault, and I'll forever regret it. I rarely look back on my life and want a do-over, but this is one of those circumstances where I would do things in a totally different way if I had the chance. Logistically, I'm not sure how much more I could have offered during that bone-crushing, exhausting time of my life, but I just let space and time overwhelm me, and I couldn't be more sorry about that decision.

Oh, to have been a better friend when it mattered most...

At this point, I feel convicted to never again completely neglect those I deeply love, no matter my own circumstances. Life is never too difficult for a short phone call or a card in the mail. Additionally, I feel the need to keep my circumstances in check and to continually cling to the cross of Christ so that I too do not slip away into a despair that leads to physical death. It astonishes me that the consumption of alcohol is ultimately what consumed the friend I could never convince to drink, and if a shockingly-altered lifestyle could take her down, it could take anyone down. Moreover, I feel a commitment to the eight-year-old daughter she left behind. I believe it's largely my continued responsibility to keep Denise's memory alive in that little heart. I feel that, at the very least, I owe it to Denise to be as crazy an "auntie" to that little one as I was a crazy friend to her mother. Most importantly, I feel it's my responsibility to have the relationship with her that makes Christ accessible and approachable, because without her mother, I'm not sure anyone else would have done that for me.

With Denise on my 7th Birthday (July 1983)

Roller Skating with Denise (September 1988)

Getting Gussied Up (Summer 1990)

Underwater with Denise (Summer 1991)

Camping and Swimming at Blue Hole (Summer 1991)

At the Amusement Park with Denise and her sister, Gloria (Summer 1991)

At Denise's 14th Birthday Party (March 1992)

Best Buddies (February 1992)

Masks with the Ladies: Teresa, Denise, and Mandi (May 1992)
[This was the summer Denise told me about Jesus in an unrelenting way...]

Celebrating Christmas with Denise, Gloria, and Matt (December 1993)
[My first Christmas as a Christ-follower]

Concert-going with Denise (November 1994)

My Bridal Shower, Denise at my side (July 2000)

Denise holding Gracie right after delivery (May 2002)

Denise holding the long-awaited baby Brystol (August 2009)

Denise's Memorial Service (January 2013)

Denise's Memorial Service (January 2013)

Denise's daughter with all her "Aunties" (January 2013)
Denise's friend Robin, me, and Denise's sister Gloria

Sunday, January 27, 2013

Overnight in Austin

On Saturday, our family attended the quarterly "waiting family" support group weekend at our adoption agency. We've been active with our agency, waiting to adopt again, since the summertime. We were matched with a birthmom in December, but before we could take custody of the baby, she was pressured by her family to relinquish to a distant cousin. CPS got involved as our agency was pushed away, and ultimately, that little girl wasn't meant to be ours. Our social worker felt awful about the failed match, but we know God has a greater plan and we had peace. The social worker joked that maybe this loss meant there was a little boy in our future, but we'll see. We'd be blessed by a new little family member, regardless of gender. In the meantime, we wait -- and attend support group meetings.

Because we had to make an out-of-town trip for the meeting, we opted to make the whole weekend one of getaways. James took the day off work on Friday, and he and Bub spent the day in Houston at a baseball card convention. They added a few cards to their collections before enjoying a night in a hotel room, then we all drove in from different directions to attend the meeting.

After support group, James took Bub and the two littlest ladies home while Gracie, Brystol, and I drove to Austin. Because we were coming in in the evening, we drove straight to South Congress Avenue to browse the cool shops and hit up the food trucks. We dined on Thai food, bought sweets at Big Top Candy Shop, and tried on sunglasses and vintage clothes at a few of the shops. We picked up a couple of new Barbie dolls before heading back to the hotel room (where two happy girls played together for a couple of hours before sleeping). The next day, we enjoyed the hotel pool and hot tub before hitting up the Round Rock outlet mall on the way home. It's always so special to have some alone time with one or two kiddos. We all enjoy the individual attention and time to reconnect.

Monday, November 5, 2012

L'esprit de Corps

My mom passed away fourteen very long, incredibly fast weeks ago. She died very early in the morning on Tuesday, July 31, 2012, to be exact. Ultimately, it was the metastasis into her spinal fluid -- Leptomeningeal Carcinomatosis -- that did her in. She made the decision one Tuesday to have me call in a hospice agency to help care for her, and by the following Tuesday, she was gone. In the middle of a milky midnight, she parted with her mortal body and made her way Heavenward. What a brave soul.

I saw a friend a few weeks back, one I see primarily at baby showers and birthday parties, and she asked me if I was grieving well. "I don't know, I guess so," I said. In many ways, I think I might still be in shock, even these fourteen weeks later. I'm still waiting on Mom to call me, to ask about the mundane details of my day, to tell me about TV shows and catch me up on the latest gossip, to pick at me, to argue with me. Something. Anything. Being in full control of my faculties, I know the call isn't coming.

I just long for it.

She is especially absent here at the onset of the holiday season -- the savory, sweet days of autumn; the wonderful, wonder-filled days of joy and celebration -- they're different without her. Left behind is a tangible and painful void. No one bothered to inquire about kid Halloween costumes. Thanksgiving traditions for my children will be the ones James and I create on our own or with my in-laws. No longer will there be anyone needing a lecture about the possibility of being too generous at Christmas -- the lecture that Mom's heard and allowed to go in one ear and out the other for as long as I've had children.

Mom was missing from our recent Colorado vacation. After having traveled with us a number of times, it was odd to not even have to take her into consideration. It was also difficult to return to a location where I'd been with her just two years earlier. She was so healthy and ornery on that trip -- we had no idea that cancer was on the radar. We certainly had no idea she'd be dead a mere twenty-eight months later. I imagined all the ways we might have altered things had we known. It was bittersweet to build beautiful, new memories with my family while balancing the what-ifs of a while ago.

We weren't perfect, Mom and I, but despite the strain our individual brokenness often put on our relationship, we were always ultimately there for one another. I miss my champion, and I miss championing for her. I just pray that the days and the ways in which I served her were as much of a blessing to her as they were to me. Above all, I hope I served her in a way that pleases the Lord.

(Mom with her children 41 hours before she died...)

"Honor widows who are truly widows.
But if a widow has children or grandchildren,
let them first learn to show godliness to their own household
and to make some return to their parents,
for this is pleasing in the sight of God.

I Timothy 5:3-4

"Honor your father and your mother,
that your days may be long in the land
that the Lord your God is giving you."

Exodus 20:12

Wednesday, July 25, 2012

Brystol is Three!!

Our sweet Brystol turned three-years-old on Monday. It was a bittersweet day for me because my mom's health and strength had declined to the point that I had to cancel her playgroup party to take my Mom to see her specialty neurologist in Houston. Our friends were understanding, of course, but all day long I struggled with hard feelings -- happy to be available for and present with my mom, but sad that we'd gotten to that point so quickly and sad to miss my baby's big day.

Fortunately, we were able to make it back to the Metroplex in time to blow out some birthday candles (even if they were on a storebought cake) and to open a few gifts. The best thing about having a big family -- instant birthday party! Brystol had fun, but she did notice when we tucked her in for bedtime that her playgroup friends never came by. We'll reschedule that celebration for a less hectic time.

Cake and Presents

Instant Birthday Party

Special Time with Nanny

Tuesday, July 24, 2012

Progression

Mom's health has continued to decline. Every day for the last two weeks, her symptoms have continued to progress dramatically from day-to-day. She is hardly able to walk anymore, and when she does, it takes every ounce of focus and strength. She's lost sensation in her abdomen and no longer has the ability to sense when she needs to use the toilet. Her ability to speak is diminished -- her speech is garbled and the volume of her voice is very low. We contacted her neurologist (a specialist in Lambert-Eaton myasthenic syndrome, the neurological comorbidity she struggles with) who increased the clinical trial drug she's taking to the maximum dose, but the increase in medication was no help at all.

She wondered if she'd had a stroke, and after a fall on Friday morning, she spent the weekend in the hospital. The MRI and a couple of other tests came back indicating no significant changes, so it was believed that her symptoms were related to the LEMS rapidly progressing. Though still in a very weak state, she was medically stable, so I checked her out of the hospital on Sunday and we high-tailed it to Houston for a Monday morning appointment with the specialized neurologist.

The doctor examined Mom thoroughly. She verified Mom has declined considerably, and she said there was a remote chance we were experiencing could be attributed to an extremely rapid progression of Lambert-Eaton. However, she strongly believes that this progression is a metastasis of the cancer to Mom's spinal fluid, a disease called Leptomeningeal Carcinomatosis. The associated symptoms and the speed of progression are strong (nearly textbook) indicators. The neurologist requested the oncologist do a lumbar puncture to verify the diagnosis, but today he refused because the test is painful, risky, and unreliable, and even with an official diagnosis, there are no treatment options available to her. There are no other available treatments for LEMS (besides the clinical trial drug she's taking -- 3,4 DAP), and in her declined and fragile medical state, there are no additional treatments available for the Oat Cell Carcinoma. The time has come to hire a hospice care agency, which I will do tomorrow.

Prayer is our most immediate need. This is an intensely difficult time for Mom and for us. She's been feeling a bit isolated since leaving her roommate and moving far from her friends and coworkers. Helping her through that sense of loss is a priority, especially now. We need loads of all manners of grace and strength right now. We're swiftly being swept away towards the dark night of the soul.

"Be strong and courageous. Do not fear or be in dread... for it is the Lord your God who goes with you. He will not leave you or forsake you. It is the Lord who goes before you. He will be with you; he will not leave you or forsake you. Do not fear or be dismayed." -- Deuteronomy 31:6,8 ESV

"Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid." --John 14:27 ESV

"So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal." -- 2 Corinthians 4:16-18 ESV

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